Amanda: Grief and celebration| Navigating new chapters
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Amanda: Grief and celebration| Navigating new chapters

The internet is an interesting place. A place of connections, for both good and bad. A place for sharing knowledge, and a place for following people you have never met. Every now and again a creepy internet stalker turns out to be an actual really wonderful person. Every now and again, that really wonderful person…

Suz: For me

Suz: For me

When “they” say this journey is a rollercoaster, guys, whoever “they” are, they aren’t kidding. These past few months have brought struggles and hardship, along with moments of joy, and glimpses, twinklings, little birdies of hope. Suz is back for an update on life these days and why she has been radio silent on the…

Katrina: Navigating the repeat hospitalizations

Katrina: Navigating the repeat hospitalizations

You’ve heard it before…medical parenting is not for the faint of heart, medical parenting is a roller coaster. With hospitalizations come tests, and fear, and pain. After discharge, the family processes everything that just happened, the “new normal”. For some, this happens frequently. How do you manage the in-between hospital time, waiting for the next…

Jessica | Grief

Jessica | Grief

Merriam-Webster defines grief as “deep and poignant distress caused by or as if by bereavement” or “trouble, annoyance”. The American Psychological Association goes further to include, “Grief often includes physiological distress, separation anxiety, confusion, yearning, obsessive dwelling on the past, and apprehension about the future. Intense grief can become life-threatening through disruption of the immune…

Jessica | Finding the Cure: Navigating Rare disease and research

Jessica | Finding the Cure: Navigating Rare disease and research

Every family with medically complex children is impacted in some way by advances in medicine and therapy. Some have the benefit of recent developments. Others hope for cures and treatments on the horizon, yet just out of reach when they are needed most. At some point, do we all believe we will be the ones…

Episode 85: Rita | loving bobby : special need’s parenting in the 1950’s

Episode 85: Rita | loving bobby : special need’s parenting in the 1950’s

We can all agree that medicine has come a long way in recent decades. Parents can now receive some diagnoses before their child is even born and receive treatments that didn’t exist prior.  Within our society, though there is still a lot of work to do, there have been changes as well. In 1975, the…

Episode 84 – Claire: Chronically Beautiful | Connection in Caregiving

Episode 84 – Claire: Chronically Beautiful | Connection in Caregiving

Hey there mom. I have a question. What would it mean to you to know that there is someone out there who understands firsthand what it means to live with a chronic illness? Not only understands, but has created a project with the sole purpose of spreading joy and hope to others living with similar…