You’ve heard it before…medical parenting is not for the faint of heart, medical parenting is a roller coaster. With hospitalizations come tests, and fear, and pain. After discharge, the family processes everything that just happened, the “new normal”. For some, this happens frequently. How do you manage the in-between hospital time, waiting for the next…
Welcome back everyone! We are so excited for Season FIVE of When Autumn Comes! It has been a summer and we have a lot to catch up on. Today, Susan fesses up about what happened at the end of season four. Season four ended? Why yes it did, but not in the way we intended….
Merriam-Webster defines grief as “deep and poignant distress caused by or as if by bereavement” or “trouble, annoyance”. The American Psychological Association goes further to include, “Grief often includes physiological distress, separation anxiety, confusion, yearning, obsessive dwelling on the past, and apprehension about the future. Intense grief can become life-threatening through disruption of the immune…
Every family with medically complex children is impacted in some way by advances in medicine and therapy. Some have the benefit of recent developments. Others hope for cures and treatments on the horizon, yet just out of reach when they are needed most. At some point, do we all believe we will be the ones…
Do you ever have that feeling deep in your gut that you need to check on your kid, and then they are doing something they shouldn’t be doing? Have you ever thought of someone and then the phone rang? Is this just intuition or something more? Today, we sit down with Jen. Jen shares with…
We can all agree that medicine has come a long way in recent decades. Parents can now receive some diagnoses before their child is even born and receive treatments that didn’t exist prior. Within our society, though there is still a lot of work to do, there have been changes as well. In 1975, the…
Hey there mom. I have a question. What would it mean to you to know that there is someone out there who understands firsthand what it means to live with a chronic illness? Not only understands, but has created a project with the sole purpose of spreading joy and hope to others living with similar…
We’ve heard the rumors…Susan and Diane had a massive fight. Diane secretly quit the podcast. They aren’t speaking and blocked each other on social media. Are the rumors true? Have Susan and Diane had a massive breakup? Surely there is some tea to be spilled here. So what’s the deal? Today, Diane is back…for a…
As we wrap up a year, one of my favorite guests is back for a visit. Daniel Defabio is back on the show to catch up and tell us about his newest project – a “late night style” show for those who are part of our medically complex, disabled community. Additionally, I realized that I…
Every one of us is special. Every one of us needs connection. When we connect with people who are “like us,” how do we find connection in rarity? Where do we go for support when we are one of a very few who share a similar story? Today, I have the pleasure of introducing you…