Episode 78: Olivia: Dumping the bucket | Pivoting as a rare disease family
Meet Olivia and her beautiful family. Her youngest son, Archer, was born with a slew of medical complications and was later diagnosed with not one, but two rare diseases: Kabuki Syndrome and RYR1. This family has had to make some logistical decisions, including career and geographic moves, to make sure their entire family is balancing the best way they can.
Topics discussed that you do not want to miss:
- Two rare genetic syndromes that do not play well together
- The Teeter Totter: spouses handling tough news
- Born at the start of the pandemic… plus career shifts, and postpartum depression
- The language of trauma
- The lady in the grocery store
Links and resources:
- Learn more about Archer and Kabuki Syndrome
- WAC is a program of the Apricity Hope Project: apricityhope.org
- Freebies for you: www.SuzGeoghegan.com/Freebies
- Follow us on Facebook: www.facebook.com/WhenAutumnComesPodcast
- Join the WAC Society to talk about all things pod related: www.facebook.com/WhenAutumnComesSociety
- Follow us on Instagram: @WhenAutumnComesPodcast
- Catch up with Suz: @suzgeoghegan on insta
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Where to listen:
You can listen to this episode, and all episodes, of the When Autumn Comes Podcast on platforms such as Apple Podcast or Spotify. You can also stream every episode here on our website!
