Episode 30: Hope | Still Here

Today’s guest is our first, non-special needs mom guest.  Dr Sammy Vergano is a geneticist at the Children’s Hospital of the King’s Daughters.  She is here to offer moms like us a candid conversation about life working with rare kiddos.  Topics we talked about that you do not want to miss: Geneticist vs Genetic Counselor…

YOU give us hope and we are incredibly grateful for the support you have given us.  At the end of every episode we ask our guests “What gives you hope?” but not today!  Today we are getting ready for Thanksgiving!  Earlier this month we asked you to call the When Autumn Comes Hotline and tell…

Every family with medically complex children is impacted in some way by advances in medicine and therapy. Some have the benefit of recent developments. Others hope for cures and treatments on the horizon, yet just out of reach when they are needed most. At some point, do we all believe we will be the ones…

Hey mama. A NICU hospital stay is like stepping into another world – one where there are a whole lot of questions. What do these medical terms mean? What are these numbers? How do you advocate for yourself and your baby? In the midst of worrying about your child’s health and wellbeing, you’re wondering about…

This is Part 2 to Elizabeth’s story.  Go back to episode 21 and start there if you didn’t listen.  After losing her first son Kyan at just 36 days old, Elizabeth has another son (after a pregnancy of more grief).  She talks about the beautiful relationship that her son Bodhi has with his old brother…

Jen’s story has so many layers, it deserved two episodes!  This week we are talking about a life changing decision Jen and her husband made to place their son Silas in a facility for disabled children.  Jen openly talks about the decision making process, the grief and guilt she felt, and the blessings and heartaches…