Growing up, a friend was someone you could share your snack with, tell your secrets to, and play with at recess. Of course, that changes with adulthood. But how does this change when you are a parent of a medically complex child? What does friendship look like when your days and nights are spend caregiving?…
Any parent of a child with a rare disease hopes for a cure, a treatment, anything to improve their child’s quality of life. We often hear about new developments in medicine for more common illnesses, but are our young zebras forgotten? Is someone doing something to help? Today, Susan gets to speak with Dr Keri-Lyn…
Our dear friend and former co-host, Diane, used to talk about two things sitting together at the same time without blending the two. Did you know what she meant by that? It seems like it resonated so well with some people, while Suz never fully understood it. Today, the girls re-visit that concept. They discuss…
According to the google, anxiety is a normal human emotion characterized by feelings of unease, or fear about a future-oriented threat. Anxiety can have physical manifestations, along with mental, and can interfere with daily life. We have spoken about anxiety before. Today, the girls sit down to re-visit the subject. Medical motherhood comes with a…
We have all heard the stories, watched the documentaries. You know the ones…The ones where the mother is injuring her child to make her child appear sick. The child spends a lifetime in hospitals…Of course, these stories are terrible and heartbreaking. How do these stories affect moms of children with actual diagnoses? Today, Suz and…
Once a year, flamingos flock to Virginia Beach for a weekend. Not real feathered, flying, bird flamingos…Mingo Mommas! These women and their friends and families join together for the most epic camp out fundraising weekend ever, in support of the Apricity Hope Project. This year, Suz packed up not just her camper and a million…
Motherhood changes you who you are to your core. You were once yourself, and now you are “mom,” with different priorities and goals, a new name, and different responsibilities. Trauma, and medical motherhood is an entirely different ball of wax. The old you is buried underneath layers and layers of hospitalizations, stress, and management of…
Some things you just can’t say…or maybe you can. Maybe its better to air it out, in therapy with a trained professional would be ideal. But…of course sitting down with your medical mom bestie to share is ok too. Today, the girls chat about the things people tend to keep quiet. The times we don’t…
Today, the ladies sit down with their new friend, Canadian Susan. Her name isn’t really “Canadian Susan,” but it helps with clarity when the Susan’s sit. You guys know American Susan, now welcome our new friend! Also Susan. Susan from the north shares with us her story of losing one child and raising another, with…
So many of us have people in our lives who love us. For that, we are so very grateful. In the chaos and chronicity of medical motherhood, how do we tap into that resource? Once we have moved beyond the infant stage, or the initial diagnosis, meal deliveries dry up. But just because the meal…