Hello Season TWO in 2022! Today Suz and Diane are kicking off the new season back together, talking about milestones and goals for our medically complex, disabled children. Topics we talked about that you do not want to miss: Do you actually do all the goals? Inch-stones vs Milestones Checklists and boxes Where to listen: …
One year of amazing stories. One year and so many seasons. One year of inspirational guests. One year of learning how to use our mics. One year of friendships. One year of hope. It has been a year. Thank you all for being on this journey with us. Today we are sharing a conversation between…
Jen’s story has so many layers, it deserved two episodes! This week we are talking about a life changing decision Jen and her husband made to place their son Silas in a facility for disabled children. Jen openly talks about the decision making process, the grief and guilt she felt, and the blessings and heartaches…
Trauma. Grief. Heartache. I know so many of us face these things on a daily basis. Today’s story is no different. Years into her journey, Jen is able to share details of her family, specifically of her two boys Carter and Silas. Hemophagocytic Lymphohistiocytosis tragically changed life as Jen knew it, forever. Topics we talked…
YOU give us hope and we are incredibly grateful for the support you have given us. At the end of every episode we ask our guests “What gives you hope?” but not today! Today we are getting ready for Thanksgiving! Earlier this month we asked you to call the When Autumn Comes Hotline and tell…
This ride y’all… it’s a crazy one. A lot of us somehow ended up on a path we never expected to be on. It can be dark and cold, scary and lonely. But it can also be bright and warm, encouraging and friendly. Today Suz and Diane talk about the unexpected joys and gratitude they…
Meet Stacie! Mama to Lainey and Calvin. Lainey has a rare genetic disease that can make their day-to-day lives incredibly unpredictable due to the main symptom, recurring attacks of paralysis that can affect one side of the body, the whole body, or even move from side to side. While Lainey’s condition may be rare, the…
Today we are sharing a conversation that Diane and I recorded on a whim after a friend sent a text about her mixed emotions about her daughter’s recent IEP meeting. We chat about struggles with the school system, home based schooling, navigating medically complex children while navigating the school process and… well, germs. This episode…
Meet Megan! She is a sister with a lot of siblings, three of which are disabled. We are pretty sure Megan is a unicorn example of a sister but we are hopeful there are more out there like her. Megan is real and honest with us, explaining why she feels more comfortable with the disabled…
There are so many different titles we pick up as moms of disabled children: nurse, therapist, teacher, advocate, comforter, and of course, mom. But some of us become frequent flyers in the hospital. We hoped to become soccer moms, but instead we are hospital moms. Today you will meet Aubree as she talks about her…