Most parents can relate to the sense of losing themselves at least a little bit to parenthood. We leave behind our hobbies and dedicate ourselves to caring for these tiny humans who have taken up residence in our lives. Medical and special needs parenthood takes that to a different level. How do we maintain ourselves…
For those of you who listened in on Season 5, I know you have been at the edge of your seats waiting for Season 6 to start! Season 5 sure was a nail biter, filled with exciting content. Can you sense the sarcasm? I had wonderful guests and lofty plans, but the weight of medical…
The internet is an interesting place. A place of connections, for both good and bad. A place for sharing knowledge, and a place for following people you have never met. Every now and again a creepy internet stalker turns out to be an actual really wonderful person. Every now and again, that really wonderful person…
When “they” say this journey is a rollercoaster, guys, whoever “they” are, they aren’t kidding. These past few months have brought struggles and hardship, along with moments of joy, and glimpses, twinklings, little birdies of hope. Suz is back for an update on life these days and why she has been radio silent on the…
You’ve heard it before…medical parenting is not for the faint of heart, medical parenting is a roller coaster. With hospitalizations come tests, and fear, and pain. After discharge, the family processes everything that just happened, the “new normal”. For some, this happens frequently. How do you manage the in-between hospital time, waiting for the next…
Welcome back everyone! We are so excited for Season FIVE of When Autumn Comes! It has been a summer and we have a lot to catch up on. Today, Susan fesses up about what happened at the end of season four. Season four ended? Why yes it did, but not in the way we intended….
Merriam-Webster defines grief as “deep and poignant distress caused by or as if by bereavement” or “trouble, annoyance”. The American Psychological Association goes further to include, “Grief often includes physiological distress, separation anxiety, confusion, yearning, obsessive dwelling on the past, and apprehension about the future. Intense grief can become life-threatening through disruption of the immune…
Every family with medically complex children is impacted in some way by advances in medicine and therapy. Some have the benefit of recent developments. Others hope for cures and treatments on the horizon, yet just out of reach when they are needed most. At some point, do we all believe we will be the ones…
Do you ever have that feeling deep in your gut that you need to check on your kid, and then they are doing something they shouldn’t be doing? Have you ever thought of someone and then the phone rang? Is this just intuition or something more? Today, we sit down with Jen. Jen shares with…
We can all agree that medicine has come a long way in recent decades. Parents can now receive some diagnoses before their child is even born and receive treatments that didn’t exist prior. Within our society, though there is still a lot of work to do, there have been changes as well. In 1975, the…