Hey there mom. I have a question. What would it mean to you to know that there is someone out there who understands firsthand what it means to live with a chronic illness? Not only understands, but has created a project with the sole purpose of spreading joy and hope to others living with similar…
We’ve heard the rumors…Susan and Diane had a massive fight. Diane secretly quit the podcast. They aren’t speaking and blocked each other on social media. Are the rumors true? Have Susan and Diane had a massive breakup? Surely there is some tea to be spilled here. So what’s the deal? Today, Diane is back…for a…
As we wrap up a year, one of my favorite guests is back for a visit. Daniel Defabio is back on the show to catch up and tell us about his newest project – a “late night style” show for those who are part of our medically complex, disabled community. Additionally, I realized that I…
Every one of us is special. Every one of us needs connection. When we connect with people who are “like us,” how do we find connection in rarity? Where do we go for support when we are one of a very few who share a similar story? Today, I have the pleasure of introducing you…
Hey mama. Motherhood is really really hard. Medical motherhood, foster motherhood, adoptive motherhood…motherhood in all of its many forms is hard. Regardless, every journey to motherhood is unique, and yet so very similar. What do medical motherhood and foster/adoptive motherhood have in common? We’re so glad you asked. This week’s guest, Tracy shares her unique…
We know that it is scary to learn that your child(ren) may need extra pieces of medical equipment to survive. Medical technology should never be positioned to us as a “last resort” when in reality it is often life saving game changers for our kids. Tia is here, sharing her family’s story. I met Tia…
Meet Olivia and her beautiful family. Her youngest son, Archer, was born with a slew of medical complications and was later diagnosed with not one, but two rare diseases: Kabuki Syndrome and RYR1. This family has had to make some logistical decisions, including career and geographic moves, to make sure their entire family is balancing…
Hey mama. A NICU hospital stay is like stepping into another world – one where there are a whole lot of questions. What do these medical terms mean? What are these numbers? How do you advocate for yourself and your baby? In the midst of worrying about your child’s health and wellbeing, you’re wondering about…
We are kicking off season three just as everyone is kicking off a brand new school year! With that, our first guest is Beth Liesenfeld from the Parent IEP Lab. She is an incredible resource for parents who are navigating the school system for our medical and special needs kids. Today she breaks down a…
We know that traveling can be overstimulating for neurotypical individuals, but how does it affect our children who are already sensory sensitive? Amy, from Floyo Travel, is talking with Suz today about tips for traveling with the right mindset for special needs families who may struggle with sensory processing disorders. Topics discussed that you do…