Episode 65: Daniel | Trees

Happy Fathers Day to all the dads out there! This week, instead of having a mom share her story, we invited a dad to the show! Daniel introduces us to his family, he talks about what it feels like to be a rare disease father as he faces the ‘it’s not fair’ moments as well as the waves of grief. Daniel is one of the founders of the Rare Disease Film Festival and the Disorder Channel where they showcase rare stories. 

Topics discussed that you do not want to miss:

  • What we felt when we heard our children could be nonverbal
  • Timing throughout the journey
  • “This isn’t fair” vs “why me” mindset
  • Career change for rare
  • Waves of grief 

Links and resources:

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Where to listen: 

You can listen to this episode, and all episodes, of the When Autumn Comes Podcast on platforms such as Apple Podcast or Spotify.  You can also stream every episode here on our website!

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