Sarah is stepping in as a guest co-hostess this week to talk with Suz about anticipatory grief. Both of these mamas have two children with life threatening diseases. Both mamas are incredibly open and honest about a form of grief that is rarely discussed. Topics we talked about that you do not want to miss:…
It is the annual Feeding Tube Awareness Week! A time for people to share a bit about their journey as “Tubie Families” and not only educate those outside of our community, but support those within our community who are still navigating their way with a tube fed child. Danielle, our guest hostess, joins Suz to…
Last week we met Meredith and learned about her family of four children, two of which have disabilities. Today Meredith is talking about her journey as a special needs mom who is also homeschooling her kids. Topics we talked about that you do not want to miss: Making the decision to homeschool Support for special…
Meredith is a mom of four children, including one who has cerebral palsy and another who has down syndrome. Today’s episode was as if two new mom friends sat down and had coffee together. We bonded over things like medical trauma and PTSD, chatted about life receiving heavy news over the phone, and marveled in…
Channing is a rare disease mama who has faced many ups and lots of downs over the last decade of motherhood. Her daughter, Peytan, has a condition called Cystinosis and is in need of a kidney donation. Today Channing is bravely opening up with us about how her anxiety has affected her and her family…
Hello Season TWO in 2022! Today Suz and Diane are kicking off the new season back together, talking about milestones and goals for our medically complex, disabled children. Topics we talked about that you do not want to miss: Do you actually do all the goals? Inch-stones vs Milestones Checklists and boxes Where to listen: …
One year of amazing stories. One year and so many seasons. One year of inspirational guests. One year of learning how to use our mics. One year of friendships. One year of hope. It has been a year. Thank you all for being on this journey with us. Today we are sharing a conversation between…
Jen’s story has so many layers, it deserved two episodes! This week we are talking about a life changing decision Jen and her husband made to place their son Silas in a facility for disabled children. Jen openly talks about the decision making process, the grief and guilt she felt, and the blessings and heartaches…
Trauma. Grief. Heartache. I know so many of us face these things on a daily basis. Today’s story is no different. Years into her journey, Jen is able to share details of her family, specifically of her two boys Carter and Silas. Hemophagocytic Lymphohistiocytosis tragically changed life as Jen knew it, forever. Topics we talked…
YOU give us hope and we are incredibly grateful for the support you have given us. At the end of every episode we ask our guests “What gives you hope?” but not today! Today we are getting ready for Thanksgiving! Earlier this month we asked you to call the When Autumn Comes Hotline and tell…